Health-Related Quality of Life Among Adult Hemophilic Patients in Nanakali Hospital, Erbil City

Section: Original Articles

Abstract

Background and objectives: Hemophilia is a rare, congenital bleeding disorder characterized by a lack of clotting factor FVIII (hemophilia A) or FIX (hemophilia B). The present study aims to evaluate health-related quality of life of adult hemophilic patients in Nanakali hospital in Erbil cityMethods: A descriptivecross-sectional study design has been carried out to evaluate health-related quality of life of hemophilic patients at Nanakali hospital in Erbil city. A non-probability, purposive sample size of (90) adult male patients with Hemophilia have been selected from Hemophilia department at Nanakali Hospital in Erbil city for data collection.Results: indicating that the majority (41.1%) were aged between 18-23 years, with a mean age of 30.16 years (SD = 12.281). Regarding education levels, most participants have completed secondary school (23.3%) and hold a college degree and above (22.2%). The majority (87.8%) has hemophilia A, while Hemophilia B is 10%, and a small percentage (2.2%) has been acquired hemophilia. The severity of the disease is distributed between mild (37.8%), moderate (32.2%) and severe (30.0%) cases. The average health quality of life (HRQOL) was 3.16, which went from 1.33 to 5.11, SD (1.04), the total alpha coefficient was 0.684. Between dimensions, Family Planning (mean = 3.86) and work and school (mean = 3.82) showed the highest score suggests in these areas. On the other hand, the dimensions had "partnership and sexuality" the lowest score (2.49). The total alpha coefficient was 0.684.Conclusion: The research indicates that adult hemophilia patients experience moderate to poor health-related quality of life across several domains. the research findings emphasize that the multifaceted impact of hemophilia on the health-related quality of life (HRQoL) of adult patients.

References

Download this PDF file

Statistics